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“Trying to make medications more affordable is important, but if Washington isn’t careful, we might leave innovation behind.” This is the message we heard from Amy, a Voters for Cures advocate from South Carolina who reminds us what’s at stake in the broader public policy debate around medical innovation, access and affordability.
Patients all across the country, just like Amy, bravely battle diseases each and every day. One thing that helps keep them going is knowing not only that biopharmaceutical researchers here in the U.S. are searching for new ways to fight their diseases but that we also have an ecosystem that allows those risks in R&D to take place.
Since we launched Voters for Cures, a national grassroots mobilization of patients, family members and caregivers, we have met powerful champions along the way. Amy, a mom of two teenagers who was diagnosed with multiple sclerosis (MS) 13 years ago, is just one example.
Amy recently opened up to share her story. When she was a new mom first diagnosed with MS, she recalls an overwhelming sense of fear. She worried about whether she would be able to care for her family and herself. She wondered if she would be present for all of life’s little moments so many of us take for granted.
Amy’s outlook on her disease has since changed. Over the past decade, medicines have helped change how she manages her condition. This is a result of new, evolving treatments that have improved our approach to treating complex conditions like MS. Recently, Amy received a treatment that was once used for leukemia that now has been studied and approved to treat her condition.
But Amy is worried that future breakthroughs could be at risk. It’s critical that patients can afford the medicines they need – and many Americans are rightly concerned about the cost of medicines and health care more broadly. That is why we support policies to lower patients’ out-of-pocket costs, including sharing discounts biopharmaceutical companies give insurance companies with patients at the pharmacy counter.
We cannot take progress for granted. At a time when policymakers in Washington and state capitals are considering proposals that would impede patients’ access and chill new research, it’s patients like Amy and her family who will face those consequences.
Looking ahead, Amy believes medical innovation is our best pathway forward towards new cures and treatments. “Myself and millions of others, need to know that there are revolutionary treatments and tools available to help us fight disease and embrace an intense hope for our future and the future of our families.”
By coming together, patients, caregivers and their families will have a stronger, unified voice. Amy’s story – like so many others – is a rallying cry for all of us. “Innovation is hope” she says. “And the last thing you want to lose is hope.”
Click here to watch Amy’s story.
Robert Zirkelbach
Robert Zirkelbach is an accomplished public affairs executive with more than 20 years of experience shaping the debate and influencing policy on behalf of highly regulated industries and corporations. As Chief Public Affairs Officer & Head of Strategic Initiatives at the Pharmaceutical Research and Manufacturers of America (PhRMA), Zirkelbach leads public affairs, strategic initiatives and membership on behalf of America’s biopharmaceutical industry.
He oversees integrated public affairs campaigns that advance patient-first solutions, strengthen our health care system and preserve the role of the U.S. as the world leader in biopharmaceutical innovation. Since returning to PhRMA in 2023, he has elevated the industry’s voice in Washington, expanded PhRMA’s membership and spearheaded the organization’s five-year strategic plan.
Previously, Zirkelbach served as Global Head of Issues and Advocacy at ExxonMobil, where he led high-impact advocacy campaigns on issues central to the company’s mission, including climate change and plastic waste. During his tenure, he also oversaw a strategic risk function responsible for identifying and mitigating potential policy, geopolitical and reputation risks facing the company. Zirkelbach served as spokesman for America’s Health Insurance Plans (AHIP) during the pivotal debate and implementation of the Affordable Care Act. He started his career on Capitol Hill as press secretary for Congressman Jim Nussle (R-IA).
Zirkelbach is a graduate of Central College. He lives with his wife and two children in Washington, DC.
Robby Zirklebach
https://x.com/robzirk
https://www.linkedin.com/in/robzirk/
Chief Public Affairs Officer & Head of Strategic Initiatives
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