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According to our inaugural Patient Experience Survey, the pandemic has created new access and affordability barriers to care, exacerbating the health care concerns of Americans and their families. For many Americans, direct impacts from the pandemic, including loss of income or loss of employer-sponsored health insurance coverage, have brought barriers in health care access and affordability to the forefront.

Here are key findings from the report:

The pandemic has exacerbated anxiety around health care access for millions of Americans.

One in five (22%) Americans reported that the pandemic has prevented them from accessing the care they needed, while 4 in 10 Americans reported that this disrupted environment has led to an increase in their anxiety about their family’s ability to access care.

The pandemic has created new barriers disproportionately impacting certain populations and people of color.

For example, parents (62%) and caregivers (59%) are among the most affected by barriers to care created during the pandemic, along with non-white Americans, especially Black Americans (54%). In addition, people in urban areas (49%) are more likely to say the pandemic has made access to health care more difficult than those in rural (32%) and suburban areas (32%).

Screen Shot 2021-12-06 at 9.17.00 AM

Americans need patient-centered, commonsense solutions to improve health care access and affordability.

Many of the access and affordability challenges patients face are driven by less generous health insurance benefits – where patients are paying more but getting less. When it comes to solutions, a majority (59%) of patients prioritize lowering out-of-pocket costs over lowering their premium costs (41%).

Policymakers should look at the entire health care landscape – including structural and social barriers to access in the patient experience – to improve the health care system. Now more than ever, it is more important to advance solutions that make an impact on patients’ lives today. Our patient-centered agenda supports solutions that help end the COVID-19 pandemic, improve health care access and affordability, and address health care inequities.

Learn more at PhRMA.org/BetterWay.

Cynthia Hicks

Cynthia Hicks is Senior Director of Public Affairs at PhRMA focusing on polling and opinion research that supports advocacy communications and strategy. Prior to joining PhRMA, Cynthia worked as a consultant, marketer, and head of polling for a civic technology company where her work supported issue advocacy organizations and policy makers on both sides of the aisle. Cynthia is a proud Los Angeles native and outside of the office she enjoys an early morning HIIT workout and spending time with friends and family.

Cynthia Hicks

Survey confirms too many insured Americans face barriers to reliable health care

April 22, 2026

Americans believe U.S. pharma leadership needs to be protected

February 26, 2026

50-state poll says Americans are concerned that hospital markups hurt patients

January 27, 2026

Health care practitioners sound the alarm on middlemen-imposed barriers to patient care, need for policy change

March 13, 2025

Biopharmaceutical innovation for a healthier America: PhRMA releases new innovation report

February 21, 2025

New policy agenda charts solutions for a healthier America

February 20, 2025

A successful PhRMA Forum highlights our commitment to a healthier America

February 20, 2025

Reimagining patient access through meaningful policy reform

November 5, 2024

New PES survey: Out-of-pocket costs lead key health care priorities ahead of the November election

October 30, 2024

Americans speak out on health insurance barriers and need for policy change, according to the latest Patient Experience Survey

October 28, 2024

Where voters stand ahead of the election

October 16, 2024

Key voter insights two months from Election Day

September 10, 2024

Voters across all 50 states want state policymakers to focus on health insurance and PBM practices

July 30, 2024

WTAS: Voters voice concerns about PBM abuses, call on policymakers to act

July 19, 2024

New 50-state poll Americans want to hold health insurers and PBMs accountable for high out-of-pocket costs and other practices

July 9, 2024

ICYMI: What patients care about this election year

June 24, 2024

Key election year voter insights

June 6, 2024

ICYMI: Voter priorities this election season

April 18, 2024

Voter insights: Four things to know

March 7, 2024

Four years later, Maryland board still hasn’t delivered for patients

February 12, 2024

Setting the Record Straight: Comparing U.S. drug prices to those in foreign countries hurts patients

February 7, 2024

New poll: Americans agree that expanding the TRIPS waiver will harm U.S. global manufacturing and innovation leadership

January 29, 2024

When it comes to the future of innovation, the ball is in policymakers’ court

January 22, 2024

WHO Pandemic Agreement offers opportunities and risks for American innovators

November 20, 2023

The IRA’s pill penalty threatens the future of oncology R&D

November 16, 2023

ICYMI: WSJ — Same Drug, Two Prices: Why the Higher Price Prevails

November 15, 2023

One year to Election Day: Four voter priorities to watch

November 6, 2023

ICYMI: Scott LaGanga and Matt Salo deliver a State of the Industry Report

October 25, 2023

New poll shows strong bipartisan support for PBM reform

October 20, 2023

What you should know about protecting your health this fall

October 16, 2023

Word of the Month: AMR

September 27, 2023

New analysis shows PBMs use fees as a profit center

September 18, 2023

What you need to know: COVID-19 public health emergency is over, but ideological attacks on IP remain

September 12, 2023

New PhRMA ad exposes yet another way PBMs get between patients and their medicines

September 5, 2023

Navigating the Patient Experience Survey: Protecting Lifelines to Access and Innovation

July 26, 2023

Three things to know from the latest Patient Experience Survey

July 20, 2023

Key considerations as Congress works towards PAHPA reauthorization

July 12, 2023

A conversation with Dr. Mike Ybarra on the current state of COVID-19

June 27, 2023

More than 60 researchers ask Congress to support innovation

June 26, 2023

4 key facts on medicine prices and spending

May 9, 2023

4 Things to know about PhRMA’s new 50-state poll

May 4, 2023

Americans want state policymakers to lower out-of-pocket costs

May 1, 2023

Policies need to address the growing threat of antimicrobial resistance

April 28, 2023

Three facts about health care spending

April 25, 2023

AHIP’s latest misinformation campaign & what it’s trying to hide

April 24, 2023

What they are saying: Experts reinforce that TRIPS waiver expansion is harmful and unnecessary

April 13, 2023

New global analysis shows patient access challenges around the world

April 12, 2023

States can support access to medicine as COVID-19 Public Health Emergency ends

April 5, 2023

Arkansas puts patients first with new share the savings law

April 4, 2023

PhRMA provides comments and testimony to USITC investigation on COVID-19 medicines and the TRIPS Agreement

March 30, 2023

Key Trends: Patient experience data reveal how insurers and middlemen impose barriers in health care

March 29, 2023

Celebrating the success of the COVID-19 vaccines, and looking to the future

March 27, 2023

PhRMA submits comments to OSTP on enhancing clinical trial diversity

March 21, 2023

What we’ve learned from three years of fighting COVID-19

March 20, 2023

Holding pharmacy benefit managers accountable

February 23, 2023

Stopping pharmacy benefit managers from “gaming the system”

February 22, 2023

U.S. must address IP and market access barriers abroad to protect American innovation

January 31, 2023

ICYMI: PhRMA kicks off the year at the 2023 J.P. Morgan Health Care Conference

January 19, 2023

In their own words: Insured Americans support policy reforms that address access and affordability concerns

December 14, 2022

ICYMI: PhRMA COO Lori Reilly speaks about the health care agenda for the next Congress

December 9, 2022

In their own words: Financial barriers exacerbate access challenges for insured Americans

December 8, 2022

Word of the Month: What is TRIPS?

November 29, 2022

TRIPS waiver expansion risks public health

November 14, 2022

Expanding the WTO intellectual property waiver will hurt American jobs

November 9, 2022

In their own words: Insured Americans struggle to navigate complex coverage

October 26, 2022

Word of the Month: Long COVID

October 19, 2022

Protecting against influenza: A conversation with David Ross, Vice President, Commercial Operations, North America, CSL Seqirus

October 13, 2022

Mental Illness Awareness Week – A time for reflection

October 3, 2022

A key fact the White House is reluctant to admit

September 27, 2022

A key fact the White House is reluctant to admit

September 27, 2022

Partnerships are driving global COVID-19 treatment access

September 22, 2022

The dangers of expanding the TRIPS waiver

September 19, 2022

Navigating the patient experience: Burdens and barriers standing between patients and their care

September 12, 2022

ICYMI: New research builds upon growing body of evidence on value of COVID-19 treatments and vaccines

August 16, 2022

New survey: Voters seriously concerned about fine print in reconciliation bill

August 12, 2022

Myth vs. Fact: The Senate’s latest price setting proposal

August 5, 2022

The Senate’s latest price setting proposal will undermine U.S. economic growth

August 3, 2022

Celebrating Medicare’s 57th anniversary

August 2, 2022

New analysis finds deeper impact of drug pricing bill on biopharmaceutical researchers

August 1, 2022

The Senate’s latest price setting proposal will undermine: Our health care system

July 28, 2022

The Senate’s latest price setting proposal will undermine: American medical innovation

July 27, 2022

The Senate’s latest price setting proposal will undermine: Patient access to medicines

July 26, 2022

Survey Says: Prescription drug prices are not fueling inflation concerns for Americans

July 22, 2022

The Patient Perspective: Government price-setting harms patients

July 22, 2022

ICYMI: PhRMA’s Ubl pens op-ed on IP waiver for COVID-19 technologies

July 15, 2022

Increase in drug-resistant superbugs during COVID-19 highlights need for policy reforms to address antimicrobial resistance

July 14, 2022

Putting patients first at the state level — A conversation with Mark Reisenauer, President of Astellas Pharma US

July 14, 2022

Polling continues to show voters reject so-called Medicare “negotiation” once they learn about consequences for patients

July 12, 2022

By the Numbers: Patients lose when the government sets prices

July 8, 2022

Patients win as West Virginia implements first-in-nation share the savings policy

July 8, 2022

3 things voters are concerned about when it comes to their health care coverage

July 7, 2022

COVID-19 vaccines and treatments helped save millions of lives and billions in health care costs

July 7, 2022

ICYMI: Antimicrobial resistance spotlighted as growing public health threat

July 6, 2022

Patients support state action requiring PBMs and insurers to share savings and cap costs for medicines

June 16, 2022

New poll shows voters sounding the alarm on health insurance companies and PBMs

June 6, 2022

Intellectual Property waiver on COVID-19 innovation is unnecessary and harmful

May 23, 2022

ICYMI: PhRMA CEO Stephen J. Ubl spotlights lessons learned during COVID-19

May 13, 2022

ICYMI: PhRMA COO Lori Reilly spotlights efforts to improve health care in 2022 and beyond

May 9, 2022

A conversation with Barry Greene, CEO of Sage Therapeutics

May 4, 2022

Study finds insurance barriers disproportionately burden patients with chronic illness

May 4, 2022

ICYMI: New resource catalogs biopharmaceutical industry lessons learned from COVID-19

April 28, 2022

Three charts show how the Medicare Part D program could be improved to work better for seniors and people with disabilities

April 27, 2022

5 public opinion polling trends to watch

April 22, 2022

Analysis: States can help patients save nearly $1,000 annually on their medicines

April 21, 2022

The patient experience: Uncovering the barriers to care for insured Americans

March 28, 2022

Veterans Affairs 101: Three charts show how the VA system differs from Medicare

March 11, 2022

The patient experience: Insurance barriers continue to impede access to health care, especially among the country’s underserved

February 28, 2022

New Data: COVID-19 vaccine global production capacity projected to exceed 20 billion doses this year

February 24, 2022

Government price setting leaves behind families counting on new medicines

February 23, 2022

What you need to know about newly authorized COVID-19 antiviral treatments

February 22, 2022

Guest post: Joining forces to combat the COVID-19 mental health crisis

February 17, 2022

Guest Blog: COVID-19 vaccines are the key to keeping kids healthy

February 16, 2022

PhRMA submits comments urging CMS to withdraw coverage proposal

February 11, 2022

Medicaid 101: Three charts on access and spending

February 3, 2022

Government price setting won’t stop insurers from shifting costs to patients

February 2, 2022

Protecting U.S. innovation abroad to support economic and pandemic recovery

February 1, 2022

New comments outline ways to counteract cost-shifting insurance trends

January 28, 2022

New poll of all 50 states and 435 Congressional Districts shows perils of so-called Medicare “negotiation”

January 25, 2022

ICYMI: New report demonstrates growing global impact of antimicrobial resistance

January 24, 2022

New study finds more than half of brand medicine spending goes to the supply chain and others

January 7, 2022

Making medicines more affordable: Preserving safety-net programs like 340B

December 17, 2021

Post-approval research save lives. Why is Congress trying disincentivize it?

December 17, 2021

A price control by any other name would still put patients at risk and threaten innovation

December 9, 2021

Making medicines more affordable: Making insurance work like insurance

December 8, 2021

Global COVID-19 vaccination matters now and for the future

November 29, 2021

Insurance design barriers can impact patient adherence and can lead to poor health outcomes

November 23, 2021

ICYMI: PhRMA CEO speaks at STAT Summit about government price setting

November 19, 2021

Three things to know about so-called Medicare negotiation polling

November 18, 2021

Understanding breakthrough COVID-19 infections

November 11, 2021

PhRMA submission to 2022 National Trade Estimate Report underscores need for pro-innovation U.S. trade policy to combat COVID-19

October 29, 2021

The patient experience: Insurance design hurdles lead to access issues for too many Americans

October 28, 2021

The patient experience: Out-of-pocket costs are driving patients affordability and access challenges

October 19, 2021

New poll shows Americans reject Medicare negotiation once they learn more about the policy

October 15, 2021

What is Kaiser Family Foundation up to?

October 12, 2021

New report shows 3 in 10 Americans that have insurance still face a financial barrier to care

October 7, 2021

The important role of antivirals in the fight against COVID-19

October 6, 2021

Understanding Long COVID-19

September 29, 2021

PhRMA releases 2021 industry profile

September 20, 2021

A year and a half later: The biopharmaceutical industry remains committed to beating COVID-19

September 8, 2021

The impact of monoclonal antibodies and COVID-19 recovery

September 2, 2021

Recognizing National Immunization Awareness Month

August 31, 2021

Recent polling misrepresents public support for Medicare “negotiation”

August 31, 2021

Driving further innovation is critical to global vaccine equity

August 24, 2021

Myth vs. fact: Polling and Medicare “negotiation”

August 12, 2021

Supporting country readiness to boost global vaccine access

August 12, 2021

Ensuring global vaccine equity requires eliminating trade and regulatory barriers

August 5, 2021

Setting the record straight: Addressing common misconceptions about the COVID-19 vaccine

August 4, 2021

Increasing global access to vaccines by optimizing production

July 29, 2021

Guest post: Retired medics return to the field to take on vaccine delivery and disaster relief

July 23, 2021

Guest Post: A patient’s story of the long-term health impacts of COVID-19

July 21, 2021

Dose sharing as a part of the COVID-19 global vaccine equity strategy

July 20, 2021

Promoting global vaccine equity while protecting innovation

July 15, 2021

Data shows voters strongly support protecting access to their medicines

July 15, 2021

Data shows COVID-19 vaccines are creating a pathway to a strong U.S. recovery

July 2, 2021

PhRMA awards $75,000 to fund initiatives to reduce health inequities

July 1, 2021

More than 800 medicines are in development for diseases that disproportionately affect racial and ethnic communities

June 22, 2021

Americans 12 years of age and older are eligible for COVID-19 vaccines

June 17, 2021

PhRMA hosts first stakeholder workshop on clinical trial diversity

June 11, 2021

Coming together to fight COVID-19: A conversation with Barry Greene, CEO of Sage Therapeutics

June 9, 2021

A year later: Reflections on the meaning of equity

May 25, 2021

ICYMI: PhRMA president and CEO Stephen J. Ubl joins other industry leaders for a conversation on COVID-19 vaccines with Axios

May 21, 2021

Supporting India during the devastating coronavirus surge

May 20, 2021

New polling shows Americans are sounding the alarm on the TRIPS IP waiver

May 14, 2021

The Biden Administration allows politics to upend a pragmatic pandemic response

May 14, 2021

Four solutions Americans support to make health care more affordable

May 13, 2021

PhRMA CAREs Grant request for proposals: Addressing inequities in access to COVID-19 testing, therapeutics and vaccines

May 6, 2021

Ron Busby, Sr., President and CEO of the U.S. Black Chambers, Inc. on improving vaccine confidence in community

May 5, 2021

H.R. 3 threatens access to medicines, future innovation and American jobs

May 4, 2021

Reflecting on Mental Health Awareness Month

May 4, 2021

American leadership on innovation policy is essential to global health progress

May 4, 2021

Patient safety is at the heart of COVID-19 vaccine R&D

April 26, 2021

Data shows that Americans are relying on vaccines to get us through the pandemic

April 22, 2021

ICYMI: New CBO Report highlights biopharmaceutical leadership in the development of new treatments and cures

April 12, 2021

Diversifying clinical trials and fighting disease requires equity and trust

April 12, 2021

Data shows that keeping a strong biopharmaceutical industry is important to Americans

March 30, 2021

Building confidence in the COVID-19 vaccine through education

March 22, 2021

ICYMI: WSJ showcases breakthrough science of COVID-19 vaccines and implications for future medicines

March 8, 2021

Intellectual property is the key to vaccine development, manufacturing and technology sharing

March 5, 2021

Coming together to fight COVID-19: A conversation with Paul Perreault, CEO and Managing Director of CSL

February 24, 2021

Fighting variants of COVID-19

February 22, 2021

ICYMI: Report provides actionable recommendations to strengthen America’s preparedness and future health crises response

February 22, 2021

Top five issues voters want addressed in the administration’s first 100 days

February 18, 2021

The latest: What they are saying: Intellectual property protections vital to COVID-19 research, development and manufacturing

February 12, 2021

Lessons learned from COVID-19: The way we develop new medicines is changing

February 10, 2021

Growing trend: Increased vaccine confidence

January 28, 2021

The latest misleading “poll” on drug pricing

January 28, 2021

Election insights: Common ground areas to address Americans’ health care concerns

January 26, 2021

Paper finds gaps in health data are a barrier to health equity

January 11, 2021

New research shows hotspots of inequity relate to increased COVID-19 hospitalizations

January 8, 2021

American biopharmaceutical manufacturing: Fueling economic growth now and for years to come

December 21, 2020

Election insights: Voter priorities in the states

December 17, 2020

Strengthening a culture dedicated to patients and equity: A conversation with Percival Barretto-Ko, President of Astellas US

December 16, 2020

Insights from the election: Meeting voters where they are on health care

December 15, 2020

Coming together to fight COVID-19: A conversation with Kabir K. Nath, President & CEO of Otsuka North America Pharmaceutical Bu

December 9, 2020

Guest post: How COVID-19 underscores the importance of public confidence in vaccines

December 7, 2020

Guest Post: Bringing our best to the fight against COVID-19

December 3, 2020

An unprecedented year and the road ahead: A conversation with Giovanni Caforio, PhRMA Chairman and CEO of Bristol Myers Squibb

November 18, 2020

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